Someone I know, someone very lovely, has been unfortunately diagnosed with this disease...
Please, pray for her and the family - for the pain to subside, and for all our hearts to ease. She needs all the faith and happiness that we can get; and because she deserves it.
Some excerpts from the email I received.
"...diagnosed with Creutzfeldt-Jakob Disease (CJD), a very rare disease occurring in only one out of a million people per year. The equivalent in animals is mad cow disease. I immediately googled CJD on my phone, and found that it is "a degenerative neurological (brain) disease and is incurable and invariably fatal" and the median duration till death is 4-6 months. The symptoms are rapidly progressive dementia, memory loss, personality changes, hallucinations, and physical problems like speech impairment, jerky movements, balance and motor dysfunction, rigid posture and seizures. Some people succumb after just a few weeks. My niece said that eventually the patient becomes a vegetable and lastly literally forgets how to breathe.
"But sometimes, she would establish eye contact and look pleadingly into my eyes, and all I could say was "you're ok, we love you and are praying for you". She also managed a wee smile when Sofia, her one and only grandchild, arrived and sang to her.
"We don't know how much she can still understand or hear, perhaps she is going in and out of consciousness. But we are comforted by the thought that she is spiritually very ready. One of the last activities she had before the symptoms came was a closed door retreat. She is also very close to Mama Mary, and she is Opus Dei."
God is the Author of Life, and we surrender to him.
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